Harry sparkles in the Australian Women’s Weekly

Young Harry Feller doesn’t know it, but he could hold the key to a revolutionary new therapy to cure blindness

After an agonising six-month wait for genetic test results to arrive, Hollie and Daniel Feller were led into a small Melbourne hospital room in February 2014 to learn their little boy’s fate. The geneticist didn’t need to say a word. “Her hands were shaking holding the piece of paper,” recalls Hollie. “Then I knew.”

The couple’s third child, Harry, had been born deaf less than three years earlier – which was shocking enough – but the latest news came like a body blow: their only son had Usher syndrome, a rare genetic condition that would eventually make him go blind, too.

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